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Re: New Mets to brain/WBR
Hi I have whole brain rads for 6 brain lesions the largest on my brain stem in the first part of 2007. My rads were down to my C-2 spine. So it affected my ears, and my jaw. But it was effective in eliminating the tumours. I had 1 lesion that popped up in different spot in 1/08 gamma 2 craniotomy of 99% necrotic (dead) tumour with some active cells so far my last MRI's have been good, with Tykerb and herceptin on board.
Overall I have done well with the radiation side effects I thought of the beams (Icould see a light when the beams crossed) As healing lights!!
I'am a little short on the short term memory, but who isn't raising 20 somethings and a 10 year old!!!! I Will be 43 in October, so is it chemo/rad brain,or like everyone else.... That is what little notebooks and to Do lists were made for!!! I also work puzzles and going to go back to reading novels, it is good to retrain your brain.
Peace prayers and Rainbows of hope to You !!
Darita
Be brave and never let the DR's push you around!!Seek this site out and follow through with second opinions as others have posted even if it is a trip to another state!!
All of this is scary, trust God, enjoy life and laughter. Laughing is good therapy mentally and physically.
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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