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lymphedema - not just
Donna, what your mom's onc is talking about is an increased risk of lymphedema, which a little different that just basic "swelling". If they determine that she need special axillary (underarm) radiation, my suggestion would be that you get her to a certified (LANA) lymphedema therapist BEFORE the rads begin. Your oncologist or nearby comprehensive cancer center should be able to refer you, but you may need to ask before they'll start the process (sigh, alas).
This person will take some baseline measurements, and educate your mom (and you, if you so desire) about what to watch for as far as lymphedema symptoms. If she experiences symptoms, she'll return to the therapist for treatment and an at-home plan for management. It's not a certainty that she'll develop lymphedema but it's a possibility and it's much better to be pro-active and educate yourselves so that you'll get on top of it asap, if it happens. It's almost always manageable if management is begun early-on.
Let us know how this plays out, okay?
Love,
Debbie Laxague
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3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband.
4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion.
2017: Mild and manageable lymphedema and some cognitive issues.
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