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Re: Any other stage iii er pr positives?
Hi;
I am actually not really sure of my stage as I was never told but I guessed 3c....however, it's been six years for me NED (yahoo and touch wood a thousand times). I am her2++ not strongly and would love to have more genetic information on my tumors. I just went off arimidex and actonel this past month (I've never been so hot) and am now seen by my oncologist every six months.....as he still considers me high risk. I keep my eye on all the new research, am grateful tykerb is around now as I agree with Jackie about the genetic complexities of breast cancer and treatments required. Have hope as there are others of us around for long periods of time. Being er/pr+ is a positive in my view as it allows an additional avenue of treatment.
All the best,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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