[Jackie07]

[Introduced to one of our new members this thread which Jean had started in January. Then I noticed SoCalGal's tally (145 years for all 33 members) back in March. Thought I'd double check and add the ones after her posting. And I came up with 220 years and three months. [60 members* and 284* years as of July 9, 2011.]

I also noticed that many other Stage IV sisters are not on the list - the founder of this support group, Christine (NED 10 years) and AndiBB (NED 12 years), to name just a couple.

And it suddenly downed on me that I have survived my first diagnosis of stage I for 8 years. My recurrence in 2007, a Stage IIb, was caused by a series of failures - the surgeon thought she had had a clean margin, she didn't; the radiologist thought the shadow on the mammograms was 'scar tissue', it wasn't; my oncologist thought I was 'cured', he was wrong; my family doctor thought I was hypochondriac, he was also wrong ...

Will I have another recurence and become stage IV one of these days? Nobody knows. But just knowing the fact that so many of our stage IV sisters have beat the odds/on maintenance/receiving active treatment gives me confidence that whatever happens in the future, there is hope.

Thank you, stage iv sisters, for sharing your fighting spirit and triumph with us. 6-15-2011]

Name (Age at I.D.) ____Er Pr Her2 (Initial Diagn) Stage IV Diagnosis_________Clinical. Trials______Triumph years since Stage IV ___ (NED = No Evidence of Disease)

Adriana Mangus______ Er- Pr- Her2+ (June 1994) July 2003 Lung _____________________________ 7 year 11 months and counting
Ahoff (Ann) _____________________________May 2010 IBC ______________________________ 1 year 6 months and counting
Angela R __________________________ (2009) April 2011 _________________________________3 months and counting
Asahizuru _____________________ (1990, 1996) ....... 2002 Bones Spine ________________________ 9 years and counting
Barbara H _____________________ (May 1998) May 2004 Brain _____________________________ 7 yrs 2 months and counting (NED)
Ceesun (Cathy) __________________________ June 2006 Lung _____________________________5 yrs and counting
Chelee _________ Er+ Pr+ Her2+ (Dec. 2005 IIIA) Sept 2009 Bone _____________________________ 5 yrs 7 months and counting
Chrisy______________ Er- Pr- Her2+ (June2002) Sept. 2004 Liver _________T-DM1_______________ 6 yrs 10 months and counting
Colleen007____________________ Er- Pr- Her2+ Oct. 2005 Liver, spine, femur ___________________ 5 yrs 9 months and counting
CoolBreeze_____________________ (Aug 2009) May 2011 Liver _____________________________ 2 months and counting
CourtneyL ___________________ Er- Pr- Her2+ April 2008 Liver Lung (NED) Bone Brain ___________ 3 yrs 3 months and counting
DEBBIE S_____________________ Er- Pr- Her2+ Oct. 2004 Liver _____________________________ 6 yrs 9 months and counting
Deena H___________ Er- Pr- Her2+ (March 2010) Oct. 2010 Lung ______________________________ 9 months and counting
DMWARN [wife of]_________________ (1999) ......... 2000 Spine Lung _________________________11 1/2 yrs and counting
DianaMK _____________________ (Dec 2006) June 2010 Skin Lung ___________________________1 yr 1 month and counting (NED March 2011)
DQ1__________________ Er+ Her2+ (May 2009) Feb 2011 Mediastinal nodes Lung _______________ 5 months and counting
Emelie B__________________ Her2+ (Nov. 2006) Jan. 2010 Sternum lung liver bone _______________ 1 yr 6 months and counting (NED)
Fauxgypsy __________________ Er+ Pr+ Her2+ Feb 2007 Liver______________________________ 4 yrs 5 months and counting
Flossie ________________ Er+ Her2+ (Jan 2006) July 2008 Brain Rib neck _______________________ 3 yrs and counting
Hraby73 (Holly) _____________ Er+ Pr+ Her2+ April 2011 Liver Lungs _________________________ 3 months and counting
Hutchibk (Brenda) ___ Er+ Pr+ Her2+ (Nov. 2003) Aug. 2005 Chest nodes Bone Brain ___T-DM1 ______ 5 yrs 11 months and counting
Jenan ____________________ (June 2010 IIIA) April 2011 Brain (WBR) ________________________ 3 months and counting (all clean)
Joan M ____________ Er- Pr- Her2+ (Sept.2003) Jan. 2007 Lung Brain__________________________ 4 yrs 6 months and counting
Kathy T__________________ Er+ Her2+ (1984) Jan. 2003 Bone _________T-DM1 (2 yrs) _________ 8 yrs 6 months and counting
Kavy _______________________ (April 2005) Nov. 2005 Lung Liver _________________________ 5 yrs 8 months and counting
KDR (Karen) _______________ Er- Pr+ Her2 + June 2010 Liver_______________________________ 1 yr 1 month and counting
Kim in CA ____________ Er+ Her2+ (Feb 1997) Sept 2001 Liver ________ UW [Seattle]vaccine ______ 9 yrs 10 months and counting (6 yr NED)
Kim in DC ___ Er- Pr- Her2+ (Aug 1998) 2004IBC Feb. 2008 Skin Sternum _____T-DM1 (2 yrs) _______ 3 yrs 5 months and counting
Kmswilson __________ Er- Pr- Her2+ (Dec 2010) Jan 2011 Liver Bones ________________________ 6 months and counting
Krisvell ___________ Er+ Pr- Her2+ (June 2009) Jan 2011 Brain ______________________________ 6 months and counting
Lauriesh (Laurie) ____________________________ July 2010 2 Liver mets (RFA)_________________1 year and counting (4 months NED)
Linda b ___________________________ Er+ Her2+ Jan. 2007 Lower back & Neck ________________4 yrs 2 months and counting
Lori R _________________________ Er- Pr- Her2+ Oct. 2007 Liver _____________________________3 yrs 7 months and counting
Mamacze _____________________________ (2001) 2004 Liver and lungs ___Seattle Vaccine ________7 yrs and counting (NED)
Marilyn_______________________________(2000) July 2001 Bones____________________________10 yrs and counting
Mary L____________________________(Oct 2003) July 2004 Skin______________________________7 yrs and counting (NED since Oct 2007)
Missyw _____________ Er+ Pr+ Her2+ (Jan. 2001) Aug 2006 Liver ______________________________4 yrs 11 months and counting
Mtngrl (Amy) (56) _____________ Er+ (April 2011) May 2011 Liver _____________________________2 months and counting
Nancy L_______________ Er- Pr- Her2+ (Sept 2004) Feb 2009 _________________________________2 yrs 5 months and counting (NED)
Nsebesta _______________________________ (2001) May 2004 Liver __________________________ 7 yrs 2 months and counting (NED since 2005)
Pam P_________________ Er+ Her2+ (June 2001) IBC Sept 2002 Bone Brain (WBR)______________ 8 yrs 10 months and counting
PatE _______________________________________Oct 2007 Liver spine ________________________3 yrs 9 months and counting (NED)
pibikay (Hema) ____________ Er- Pr- Her2+ (2010) March 2011Vertebrae, Liver _________________ 4 months and counting
Radiant __________________ (2005) 2010 Liver & Soft Tissue Mediastinal nodes ________________ 1 yr 7 months and counting
Schoolteacher (Amelia) ______________ Nov 28. 2007 L4_____________________________________3 yrs 7 months and counting (NED since 4-16-2008)
Sheila (49.99) ___________ Er- Pr- Her2+ (Feb 2002) Sept. 2003 Neck nodes_______T-DM1(3)________7 yrs 10 months and counting
Sherryg683__________________________________Dec 2005 Lungs ____________________________ 5 yrs 7 months and counting
SoCalGal_____________(1996; 2002) March 2007 Lung Sternum 2008 NED in Brain_______________4 yrs 4 months and counting
StephN ___________________________ (Sept 2000) Jan 2002 Liver (NED) 2005 Brain (NED)_______8 yrs 6 months and counting (NED since 2005)
SuThorn _______________ Er+ Pr- Her2+ Sept. 2007 Liver__________________________ __________3 yrs 10 months and counting (NED since 1-2008)
tammymarie1971(30) ____ Er+ (Dec 2001) 2004 liver 2005 Spine/Hip ____________________________7 yrs 4 months and counting
Tonya ___________________________ Aug 2006 Liver_______________________________________ 4 yrs 11 months and counting
TriciaK ________________ Er+ (1985) 1990 spine, 2004, 2010 lung _____________________________ 21 years and counting
Trish ____________ Er (2+) Pr (3+) Her2 (3+)(May 2004) Dec. 2006 Liver 2008 Bone ______________ 4 yrs 7 months and counting
Unregistered _____________________ Jan. 2007 ____________________________________________ 4 yrs 6 months and counting
Vicky____________________________March 2011 Liver Spine________________________________ 4 months and counting
Vivienne [Mom of]_________________March 2011 Liver______________________________________ 4 months and counting
Yankeebikachic (34)________(April 2006 IIIC) July 2008 Nodes in sup. clav.______________________ 3 yrs and counting (NED)

Total 60 members* and 284* years as of July 14, 2011

From NancyL: "Go to http://www.mbcnetwork.org/ and read stories about women who have been metastic for many many years. I also have a good friend, Stage IV for 11 years, continuously on Herceptin and doing well."

*Including Christine and AndiBB and those who have posted on this thread.