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Jackie07 · 11-04-2009, 08:03 PM

Benne0505,

There is a thread (or 2) entitled "Long-time surviors" that you might want to look up (use the 'Search' button on the yellow bar.)

Her2 is usually very fast growing. But once it's caught, it can be treated quite successfully with Herceptin and chemo. Most statistics are old, pre-Herceptin era numbers. Things have been looking 'up' ever since Herceptin has become the standard (2005? 2007?) Yet everyday we are seeing new treatment schedules being tested.

Oncology staff tend to be 'tough' and sometimes don't act like normal human beings. They are facing life and death every day. So they sometimes forget how we as patient or loved ones are feeling. I had a big fall-out with my oncologist because he just wouldn't believe that I had 'mets'. Well, he's right, but not after I had a consult with a G/I doctor and several scans that finally gave me some 'peace of mind'. I think in this case, after you read the 'long-time' survivor threads, you will feel much better about the situation.

I'll be praying for your mom.

11-04-2009, 08:03 PM	#5
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Feeling confused & Sad today Benne0505, There is a thread (or 2) entitled "Long-time surviors" that you might want to look up (use the 'Search' button on the yellow bar.) Her2 is usually very fast growing. But once it's caught, it can be treated quite successfully with Herceptin and chemo. Most statistics are old, pre-Herceptin era numbers. Things have been looking 'up' ever since Herceptin has become the standard (2005? 2007?) Yet everyday we are seeing new treatment schedules being tested. Oncology staff tend to be 'tough' and sometimes don't act like normal human beings. They are facing life and death every day. So they sometimes forget how we as patient or loved ones are feeling. I had a big fall-out with my oncologist because he just wouldn't believe that I had 'mets'. Well, he's right, but not after I had a consult with a G/I doctor and several scans that finally gave me some 'peace of mind'. I think in this case, after you read the 'long-time' survivor threads, you will feel much better about the situation. I'll be praying for your mom. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 11-04-2009 at 10:35 PM..