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Old 08-12-2017, 12:15 PM   #18
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: Back on Tykerb--Still Rough

Amy,

Yesterday I was speaking with a woman whom I do not know, but who is handling the title work for a seller of mine. As we chatted I mentioned that I offer discounted services to anyone associated with the medical center where I was treated. It turned out she was treated there for Her2 BC a year or so before me. She mentioned that she had a recurrence and on the second go 'round they gave her Tykerb. I inquired about her tolerance and she said that she had terrible diarrhea until she realized that it caused her to be lactose intolerant, something she was not prior to and after completion of Tykerb. She said that once she initiated taking Lactaid the diarrhea quickly abated. I have never heard this before, but laughed and said that this information is for someone on my Her2 online support group. I am hoping it was meant for you, Amy, and that it works as wonderfully for you. Her physician and pharmacist saw no interaction with the Tykerb.
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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