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Old 08-22-2018, 08:58 AM   #1
Nurse4u2day
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Join Date: Feb 2014
Location: California
Posts: 424
IBC ( inflammatory breast cancer)

I was just going through some post and realized thereís not to much here about IBC . So just wanted to give those who have had the diagnosis and there heads are spinning as was mine when I received the devastating diagnosis. This November I will be coming up on 5 years since dx and I remain NED. As I have always said Iím not a statistic but instead an individual. Despite a lost of a friend of mine with the same diagnosis IBC, stage 3c, her2+++ only ,same treatment regimen as myself , no known hx of cancer and no genetic markers found. . Why have I made it to almost 5 years and she only survived 22 months ? No answers other then to say we are each individuals and there is always hope! You donít have to have faith in the lord above ( I personally do however ) but you must always have hope . Because without faith or even just hope all that is left is sadness and depression, not a world that I ever want to live my life in whether it be years or just months or even days. Cancer steals way to much from us. I refuse to let it steal my hope!
__________________
11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
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