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Old 12-07-2010, 04:36 PM   #14
ginnyg898
Senior Member
 
Join Date: Sep 2010
Location: Northern California
Posts: 64
Re: Just Diagnosed HER2+ Stage 4

Hi Brina:

You are definitly in the right place. I was diagnosed with her2+ bc last August and I am currently in neo-adjuvant chemotherapy. When I was first diagnosed I cried a river and felt so much fear. This disease changes your life and you must allow yourself to grieve.

The ladies on this board have provided so much support and answers to my endless questions

I agree with a previous poster's suggestion of keeping a notebook. I have a journal that goes everywhere with me. I keep track of treatments, side effects, things my oncologist and I discuss and general notes on how I am feeling. This is a journey and it helps to get it out.

Best to you...
__________________
41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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