HER2 Support Group Forums - View Single Post - My first 1yr checkup after first diagnosis and surgery

JessicaV · 02-12-2015, 02:49 AM

Hi, Had my first annual checkup today. I went in totally sure in my mind that this mammogram and ultrasound would be clear, and that my focus needed to be on getting the surgeon to give an MRI of my head and to tell me how to check the site of the mastectomy since this will not be screened.

I was therefore somewhat knocked off my stride when the Radiologist reported concern about a 7mm nodule at 12o'clock 8cm from nipple of right breast which showed up in my mammogram from last year but not in the ultrasound from last year. If it is the same lump, it is stable, but in the circumstances it could be a different lump, so they thought it best to biopsy. And they sent me for my first core biopsy, and found me a cancellation this afternoon, so I should have results by Tuesday afternoon.

My surgeon also gave me a referral for a head MRI, which is good. And there was luckily a cancellation available for that too: Thursday next week at 8am in the morning (instead of early March).

I think part of the reason the radiology reception was so amazingly helpful with appointments was because I did a really stupid thing on Wednesday: I got up believing it was Thursday, and drove for an hour to the hospital for my day of tests and review. The radiology receptionist broke it to me that my appointments were actually for the next day, Thursday. I was so sure I was right that I argued with her , "Are you sure it's Wednesday today?" I asked.

So she was rather sorry for me with my stupid chemostupid brain, and really went the extra mile to help me. Ill winds and silver clouds etc.

But I am really hoping it is not brain-metz induced brainal problems, and that the MRI will prove negative. Please keep your fingers crossed for me.

02-12-2015, 02:49 AM	#1
JessicaV Senior Member Join Date: Apr 2014 Posts: 206	My first 1yr checkup after first diagnosis and surgery Hi, Had my first annual checkup today. I went in totally sure in my mind that this mammogram and ultrasound would be clear, and that my focus needed to be on getting the surgeon to give an MRI of my head and to tell me how to check the site of the mastectomy since this will not be screened. I was therefore somewhat knocked off my stride when the Radiologist reported concern about a 7mm nodule at 12o'clock 8cm from nipple of right breast which showed up in my mammogram from last year but not in the ultrasound from last year. If it is the same lump, it is stable, but in the circumstances it could be a different lump, so they thought it best to biopsy. And they sent me for my first core biopsy, and found me a cancellation this afternoon, so I should have results by Tuesday afternoon. My surgeon also gave me a referral for a head MRI, which is good. And there was luckily a cancellation available for that too: Thursday next week at 8am in the morning (instead of early March). I think part of the reason the radiology reception was so amazingly helpful with appointments was because I did a really stupid thing on Wednesday: I got up believing it was Thursday, and drove for an hour to the hospital for my day of tests and review. The radiology receptionist broke it to me that my appointments were actually for the next day, Thursday. I was so sure I was right that I argued with her , "Are you sure it's Wednesday today?" I asked. So she was rather sorry for me with my stupid chemostupid brain, and really went the extra mile to help me. Ill winds and silver clouds etc. But I am really hoping it is not brain-metz induced brainal problems, and that the MRI will prove negative. Please keep your fingers crossed for me. __________________ 1997-2004 many cysts, many MG & U/S: polycystic breasts. Sept 2013 found lump,Cyst?? forgot lump. Dec 2013 GP check, Referred for U/S, MG,FNA. 7 Jan 2014 Radiology: Radiologist turned screen away from me. When asked she said "Not a cyst, very suspicious.See your GP asa results avail." Cancelled my psych clients for the week. 8 Jan 14 GP: 2.2cm IDC in 6cm DCIS field. FNA=malignant cells. Referred to Surgeon. Cancelled my psych clients for the month. 13 Jan 14 Surgeon said L mastectomy not lumpectomy, offered neoadjunctive trial, agreed adjunctive chemo after surgery a good choice for me. Booked Body scan and bone scan for staging (both fine) Surgery for16 Jan, 16 Jan 14 Surgeon also agreed in preop meeting to also remove 6cm fatty cyst in job lot. Good job done. 19 Jan 14 discharged home with 1 drain. 22 Jan 14 drain partly pulled out overnight, serious seroma (600 ml reducing removed every 2 days for a month) Serious staph infection because nurse said wait 3 days for yr surgeon appointment. 26Jan 14 pathology: 2.2cm Grade 3(3,3,2)ER-, PgR-, HER2+2 so to be confirmed by Sish test. Node negative. No vascular or lymphatic involvement. No metastases in scans. 30 Jan 14 HER2+ high amplification, 13 gene copies per cell. 21st Feb 14 Began 3wkly TCH adjuvant treatment at The Mount Hospital Perth, with 3monthly MUGA heart tests +Oncologist or Surgeon full physical check-up. Cancelled my psych clients for 6 months. Feb 14 First MUGA test: 71%, First C15.3 test: 20 7th March 14 began Neulasta self-applied injections 24hrs after each TCH treatment. Bonepain helped by spa, heatpacks and Claritin, reflux/indigestion helped by Somac. July 14 completed docetaxol and carboplatin, ongoing herceptin to 12 months. Severe cognitive deficit/fatigue after 1pm daily. Sept 14 Second MUGA test: 69% Cancelled my psych clients for 2014 Dec 14 Third MUGA test: 70% Second C15.3 test : 20 Cognitive fatigue delays return to work. March 2015 Tachycardia pulse 168, night in hospital. Cardiologist says no heart disease, ALIVE ECG attachment for my mobile phone now regular monitoring. July 2015 Worktrial, up to 8hrs per wk. Fatigue ongoing Aug 2015 Heart good, no evidence of cancer, just Fatigue. May 2019 Melanoma 1.5cm Stage 1 by right collarbone(was present as large freckle in 2014 and cut through by breast surgeon to remove fatty cyst at same time as mastectomy.) Melanoma removed leaving scar from shoulder to breastbone. In hospital twice for IV antibiotics. Told catagorically this could not be BC mets. Dec 2019 Still NED, still fatigue in late afternoon, but have my brain back in the early mornings. So most days I watch the sunrise and hear the birds morning chorus in my bush backyard and am glad to be alive and to be me still.