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Old 01-02-2015, 11:27 AM   #13
Dakini52
Senior Member
 
Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Re: Are blood tests really that important in follow up care?

My tumor was found during a routine visit with my primary care physician. She referred me to Seattle Breast Center for tests. The test came back positive and I was referred to a group of several oncologists. Each onc provided a one page description of who they were and how they practiced. The one I chose, Dr. Lee, seemed to fit well with my personality and disposition so I chose him. I loved that they had a write up on each of them with their picture. It felt more personal than just selecting a name at random. It has worked well for me and I feel fortunate to have found Dr Lee. You could google oncologists in your area and see what kind of ratings they are given by existing patients. I have done that before and it seems to work well.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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