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Old 01-30-2013, 04:53 PM   #50
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Pain? yes Appt? yes Relief? ????

You guys are the best medicine in the world!
(Well, the best one that doesn't directly kick HER2 BC's a$$!)

I am so happy to be home! Sleeping in my own bed. Eating what I want, when I want. Cuddling my children, my husband and my dogs as much as they'll tolerate.

And, it's much, much better to be able to decide if I need pain medicine, and then to be able to decide which ones and how much. I hated having to take what the all-powerful pharmacy computer said I needed, or else have to wait for the next time it was due (sometimes several hours later). Plus, and this will shock you, I'm sure, I'm a bit of a control freak. I know, you'd never have guessed...but I like to be in charge of my own stuff.

So...the pain is still there. Not anywhere near what I was feeling before surgery...not even in the same league. You know how they ask you to assign a number to your pain? Before surgery, and I'm not exaggerating here, before surgery, the lowest number we were able to get to was 6 - and then only briefly. Most of that week was spent hovering in the crazy place between 8 and 9 - it makes me cringe just to think about it. So, let's not!

After the surgeon worked his magic (and some clever person reattached the pain med IV) I only hit 7 once.
And since then I haven't been above 4...
I can report happily to you that right now I am smiling, resting comfortably while I check in with all of you, and am at pain level 2...
mostly because of all the staples that are keeping everything closed up nice and tight.

The highlight of my evening (get the big L for my forehead ready) is going to be a shower...in my own bathroom, using my own soap, shampoo, and conditioner. mmmm

Then, using my own gel, and smoothing mousse, hairdryer, and curling iron...I will, for the first time in 2 weeks have a hair-do that looks like me. Heck! If I still have enough stamina left, I may even put on a little eyeliner and lipstick. aaahhhh

Then, just because I can,
I will use my own favorite lotions and perfumes,
dress myself in a nightgown that has never, ever, been worn by another living soul...
and which is not brutally, painfully ugly,
and sit curled on my couch to watch something so funny that all the laughing makes my stitches ache.


Naturally, with my current level of energy...this evening will be for me...what swimming kilometers in the ocean is to our beautiful Amanda! I may only be able to accomplish part of my goal...but tomorrow is another day!

Love and hugs to all!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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