HER2 Support Group Forums - View Single Post - "Evidence based" task force

Jackie07 · 11-23-2009, 08:18 PM

Same thing happened to me in the diagnosis of my first brain tumor. Our then family doctor told us that he could give me a referral to a 'psychiatrist' if we wanted to. We changed doctor and then persisted for 7 months requesting for all kinds of tests before the huge brain tumor was found.

Just 5 minutes ago, I saw on CNN that even though the Secretary of HHS had said the task force report is just a guideline, the actual wording in the congressional bill had stated that future laws will have to adhere to the guideline.

Now the former head of NIH, Dr. Bernardine Healy, is voicing her concern on CNN - "It is not wise," she says. Carly Fiorina (former CEO of Hewett-Packer and recent breast cancer survivor who is running for a Senate seat) also just stated that the bill does not solve any of the problems it aimed to solve. Gloria Stainen just joked about what the Congress might do if there's a study report on men's low sperm count.

11-23-2009, 08:18 PM	#5
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: "Evidence based" task force - read for answers Same thing happened to me in the diagnosis of my first brain tumor. Our then family doctor told us that he could give me a referral to a 'psychiatrist' if we wanted to. We changed doctor and then persisted for 7 months requesting for all kinds of tests before the huge brain tumor was found. Just 5 minutes ago, I saw on CNN that even though the Secretary of HHS had said the task force report is just a guideline, the actual wording in the congressional bill had stated that future laws will have to adhere to the guideline. Now the former head of NIH, Dr. Bernardine Healy, is voicing her concern on CNN - "It is not wise," she says. Carly Fiorina (former CEO of Hewett-Packer and recent breast cancer survivor who is running for a Senate seat) also just stated that the bill does not solve any of the problems it aimed to solve. Gloria Stainen just joked about what the Congress might do if there's a study report on men's low sperm count. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 11-23-2009 at 09:33 PM..