HER2 Support Group Forums - View Single Post - Please post your two cents on Herceptin "side effects" real or perceived!

kat in the delta · 03-18-2008, 02:34 AM

NORA, Gerri,
Hi ! I've been finished with mine for I think... a yr+( my memory is terrible).
Yes, I am still having some of the side effects,
and a FEW are getting worse!!!

I just read an article in an MD's Journal that gave this opinion(not word for word)..
..as Now more of US are Surviving theChemotherapy & Cancer .Experience..

the researchers are Beginning to see that Dammage from Chemo's,etc.

..may not...even... show up UNTIL...8 to 10+ years AFTER stopping all
chemos,rads,..etc...
No one knew this before NOW...!!..

and......I personally hate to say it ..but most people close to you do NOT understand, nor will Never Understand what this has done to you
...... (( I do feel isolated at times..Thank you for this SITE !!))....
Others may think or Dare to Say:
" NOT HOOKED UP TO AN IV?" Then, "YOU CANNOT HAVE PAIN"!!

Well, I think it is only "AFTER" a PERSON has HAD... ALL ..

chemos, rads, surgery or whatever....
Not until all THIS IS OVER .and the DAMMAGE.. DONE.. IS ..This...
the true..
TIME A SURVIVOR IS STRUGGLING for THEIR DEAR LIFE !!!

This is WHEN almost EVERY CELL IN A PERSON"S BODY HAS BEEN

WRECKED !!! --the DNA or some part of EVERY CELL---SHATTERED !!!!

I think it will take ME YEARS--to build myself back..... if possible I'm trying... to control what I eat.,EXercise.,etc.,
Now STRESS..... is a little hard for me to control..

WHAT DO U THINK .... ???

Yes I have pain.. especially in my lower LEGS!! I think it is Not Only from the Herceptin , but as a result of receiving a combination of Chemo's.,rads.AND Herceptin.... My feet get Swollen...as well as my hands at times... I CANNOT wear any tight fitting socks or other clothing.., my fingers and toes..and feet get numb ..and I feel like I am walking on knubs, my mind seems to wander... and even gropes around trying to find a particular word.... I have a hard time going to sleep .... and really, I just do not look or feel well or LIKE I USE TO Before the Cancer Experience.

I am LIKE I AM>>>>> GOOD and BAD<<< and will NEVER BE THE SAME PERSON AGAIN !!!!!!
NO,, I canNOT do things that were once easily done. I am slower doing and thinking... and I DO NEED MY FAMILY TO PITCH IN AND HELP.

Kat in the Delta

03-18-2008, 02:34 AM	#382
kat in the delta Senior Member Join Date: Apr 2006 Location: MS Delta in Clarksdale="Home of the Blues" (near Memphis,TN)by Misssissippi River/levee's highest pt. Posts: 224	Kat in the Delta NORA, Gerri, Hi ! I've been finished with mine for I think... a yr+( my memory is terrible). Yes, I am still having some of the side effects, and a FEW are getting worse!!! I just read an article in an MD's Journal that gave this opinion(not word for word).. ..as Now more of US are Surviving theChemotherapy & Cancer .Experience.. the researchers are Beginning to see that Dammage from Chemo's,etc. ..may not...even... show up UNTIL...8 to 10+ years AFTER stopping all chemos,rads,..etc... No one knew this before NOW...!!.. and......I personally hate to say it ..but most people close to you do NOT understand, nor will Never Understand what this has done to you ...... (( I do feel isolated at times..Thank you for this SITE !!)).... Others may think or Dare to Say: " NOT HOOKED UP TO AN IV?" Then, "YOU CANNOT HAVE PAIN"!! Well, I think it is only "AFTER" a PERSON has HAD... ALL .. chemos, rads, surgery or whatever.... Not until all THIS IS OVER .and the DAMMAGE.. DONE.. IS ..This... the true.. TIME A SURVIVOR IS STRUGGLING for THEIR DEAR LIFE !!! This is WHEN almost EVERY CELL IN A PERSON"S BODY HAS BEEN WRECKED !!! --the DNA or some part of EVERY CELL---SHATTERED !!!! I think it will take ME YEARS--to build myself back..... if possible I'm trying... to control what I eat.,EXercise.,etc., Now STRESS..... is a little hard for me to control.. WHAT DO U THINK .... ??? Yes I have pain.. especially in my lower LEGS!! I think it is Not Only from the Herceptin , but as a result of receiving a combination of Chemo's.,rads.AND Herceptin.... My feet get Swollen...as well as my hands at times... I CANNOT wear any tight fitting socks or other clothing.., my fingers and toes..and feet get numb ..and I feel like I am walking on knubs, my mind seems to wander... and even gropes around trying to find a particular word.... I have a hard time going to sleep .... and really, I just do not look or feel well or LIKE I USE TO Before the Cancer Experience. I am LIKE I AM>>>>> GOOD and BAD<<< and will NEVER BE THE SAME PERSON AGAIN !!!!!! NO,, I canNOT do things that were once easily done. I am slower doing and thinking... and I DO NEED MY FAMILY TO PITCH IN AND HELP. Kat in the Delta