HER2 Support Group Forums - View Single Post - 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin???

SunDiego · 02-09-2011, 12:08 PM

Hi everyone, sorry for no recent updates, but returned to the office today after being out for the last few days doing updated scans... GREAT NEWS!
First PET/CT Aug 5
SUV 10.8
Size 3.7 x 3.2
Second PET/CT Sep 15
SUV 5.0
Size 2.3 x 2.0
Third PET/CT Dec 10
SUV 2.0
Size 1.3 x 0.4

Fourth PET/CT Feb 7 ***
SUV "Negative"
Size 7mm (residual scar?)
Tumor markers all "Normal", no PET activity... although the term wasn't used, this must mean "NED" (right?)

So after 9 cycles of TCH, it's time to go to 'only' Herceptin, and add the Tamoxifen.
There was a discussion about possibly entering the trial which randomized adding lapatanib (Tykerb) to Herceptin (no Xeloda). I'll check the other forms for discussions on that topic. If anyone reading this has insight, let us know.
Thank you for all the support the last 7 months.

02-09-2011, 12:08 PM	#36
SunDiego Senior Member Join Date: Jul 2010 Posts: 34	Re: 32 year old w/ HER2+++/Mitral Valve Prolapse & Herceptin??? Hi everyone, sorry for no recent updates, but returned to the office today after being out for the last few days doing updated scans... GREAT NEWS! First PET/CT Aug 5 SUV 10.8 Size 3.7 x 3.2 Second PET/CT Sep 15 SUV 5.0 Size 2.3 x 2.0 Third PET/CT Dec 10 SUV 2.0 Size 1.3 x 0.4 Fourth PET/CT Feb 7 * SUV "Negative" Size 7mm (residual scar?) Tumor markers all "Normal", no PET activity... although the term wasn't used, this must mean "NED"** (right?) So after 9 cycles of TCH, it's time to go to 'only' Herceptin, and add the Tamoxifen. There was a discussion about possibly entering the trial which randomized adding lapatanib (Tykerb) to Herceptin (no Xeloda). I'll check the other forms for discussions on that topic. If anyone reading this has insight, let us know. Thank you for all the support the last 7 months.