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CoolBreeze · 03-02-2013, 03:09 PM

Nancy, my oncologist also has an office in Roseville (I think). Check out Gregory Blair. I can't recommend him highly enough, and when I told one of my nurses my goal was to live to my son's high school graduation, she said, "Well, Dr. Blair is just the guy to get you there." I have heard from physician friends that he is considered very smart and is highly respected. He's the one who recommended and arranged my liver resection, which as you know is still not done often and many oncologists don't recommend. He gave me that shot and I'm grateful. He is very much "up" on new treatments.

Anyway, I did ask him about it a month ago, knowing it was about to be approved. He said he'd put me on it as soon as it was available. Maybe he said he'd "recommend" it. They have a business to run, so I can understand if it's not affordable to get it in their office; I don't begrudge them that. But it will have to be available somewhere. I'm not strong enough now to go to UCSF regularly but could go to Davis if they have it there. That would be an "out of network" hospital for me, so hopefully, Mercy will have it.

I haven't been on Perjeta and Gemzar long anyway, I've not tolerated the gemzar too well and have had to skip a few treatments. I don't mind waiting a bit to see if I can benefit from that but at this point in my health, I think an easier treatment would be best. I have relapsing c.diff and those low white counts create a problem with recovery.

Thanks for the compliment on the blog, I appreciate it.

03-02-2013, 03:09 PM	#25
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Kadcyla/TDM1 CELEBRATION @ Genentech:) Nancy, my oncologist also has an office in Roseville (I think). Check out Gregory Blair. I can't recommend him highly enough, and when I told one of my nurses my goal was to live to my son's high school graduation, she said, "Well, Dr. Blair is just the guy to get you there." I have heard from physician friends that he is considered very smart and is highly respected. He's the one who recommended and arranged my liver resection, which as you know is still not done often and many oncologists don't recommend. He gave me that shot and I'm grateful. He is very much "up" on new treatments. Anyway, I did ask him about it a month ago, knowing it was about to be approved. He said he'd put me on it as soon as it was available. Maybe he said he'd "recommend" it. They have a business to run, so I can understand if it's not affordable to get it in their office; I don't begrudge them that. But it will have to be available somewhere. I'm not strong enough now to go to UCSF regularly but could go to Davis if they have it there. That would be an "out of network" hospital for me, so hopefully, Mercy will have it. I haven't been on Perjeta and Gemzar long anyway, I've not tolerated the gemzar too well and have had to skip a few treatments. I don't mind waiting a bit to see if I can benefit from that but at this point in my health, I think an easier treatment would be best. I have relapsing c.diff and those low white counts create a problem with recovery. Thanks for the compliment on the blog, I appreciate it. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.