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Ais4Abbott · 10-14-2011, 04:10 AM

Re: CIPN
Does anything help anybody with CIPN? I heard it gets much worse in the winter. I live in the Deep South, and I can barely walk in the mornings, already. Last dose of Taxol was cancelled in May. Still got Carboplatin - last dose in May. Still on Herceptin. CIPN is severe.
Haven't resorted to drugs yet (makes other things not work). Thinking about Lyrica or the Rebuilder. Insurance won't pay for Rebuilder. Does it work? What does work? How can you exercise if you can't walk or hold things with your hands? I still work everyday, but the old age wrinkles from the pain of neuropathy is really getting me depressed. Moving papers or keying on keyboard causes pain, as does laundry. Feet are best at work in toeless shoes. Feet kill me in bed, and early or late in the day. Can't wear socks. made a tent out of pillows for my feet in bed; they cramp if they get cold, at all. Toes can not touch anything.

10-14-2011, 04:10 AM	#11
Ais4Abbott Member Join Date: Sep 2010 Posts: 15	Re: Neuropathy Re: CIPN Does anything help anybody with CIPN? I heard it gets much worse in the winter. I live in the Deep South, and I can barely walk in the mornings, already. Last dose of Taxol was cancelled in May. Still got Carboplatin - last dose in May. Still on Herceptin. CIPN is severe. Haven't resorted to drugs yet (makes other things not work). Thinking about Lyrica or the Rebuilder. Insurance won't pay for Rebuilder. Does it work? What does work? How can you exercise if you can't walk or hold things with your hands? I still work everyday, but the old age wrinkles from the pain of neuropathy is really getting me depressed. Moving papers or keying on keyboard causes pain, as does laundry. Feet are best at work in toeless shoes. Feet kill me in bed, and early or late in the day. Can't wear socks. made a tent out of pillows for my feet in bed; they cramp if they get cold, at all. Toes can not touch anything. __________________ 2007 DX DCIS ER-/PR-/Her2+ 2007 3x lumpectomy, radiation 2010 DX DCIS ER-/PR-/Her2+ Mastectomy Tram Flap - 1) wish I could delete that. 2)Interested if anyone did this, and then got implants. 3)Ruined stomach muscle. (Appreciate info about fixing this). Recommend New Orleans instead of MD Anderson for all surgery. 12/17/2010 TCH 6x/3wks Herceptin 3/wks til 11/17/11. 12/23/2010 Lost Hair - 10/5/2011 Wig free - 4/14/2013 Long Hair again. Severe nail detachment-(Past) 10/2011 - toenails still trying to grow back. 4/14/2013 - Normal toenails & fingernails. Severe neuropathy (upper thighs/upper arms) - taser sensation - (in the past), light touch finger or toes = burning. Sock free (still). Can bend knees and ankles, now. Dr. stopped Docetaxel after 5th, due to possible permanent nerve damage. (now in hands/fingers, feet/toes - pain, interested in help). 4/14/2013 - Neuropathy much less. Nerve damage is permanent in fingers & toes, hands & feet. Toekini ($10) from CVS pharmacy works great for my CIPN - feet at night. Nothing can touch my toes without burning me. I can not braid hair - fingertips do not work right. Severe constipation - (made worse by drinking small swallow of water with Senecot instead of a full glass of water - caused concrete type blockage of bowels - drink lots of water with it!)-(Past) Severe Reflux - (great medicine available for this) - Carafate (past) 4/14/2013 Much happier now. Smiling a lot. Started working in the yard again, but must wear toeless sandals. Blessed. Best wishes & Blessings to you all. Has anyone had success with Rick Simpson Oil in curing HER2? Very interested in hearing details. I live in Texas and do not know anyone that has tried it. We can not use it here.