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StephN · 12-06-2007, 12:07 PM

Not sure what to say about the cough - new allergies, perhaps?

Thanks, Lani -
Though if I had to choose which drug to take to keep my cancer in control - Herceptin or lapatinib/Tykerb, I would go with the Herceptin.
This is because I can deal better with an occassional runny nose better than runny bowels!

If all is well after next PET/CT and bloodwork, I may take a 3-month Herceptin holiday like I did last year. Give my body a chance to readjust itself.

I do wish those of us on Herceptin alone long term would be followed in more detail. If the FDA does not require that, I suppose it won't be done.

12-06-2007, 12:07 PM	#6
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Choices Not sure what to say about the cough - new allergies, perhaps? Thanks, Lani - Though if I had to choose which drug to take to keep my cancer in control - Herceptin or lapatinib/Tykerb, I would go with the Herceptin. This is because I can deal better with an occassional runny nose better than runny bowels! If all is well after next PET/CT and bloodwork, I may take a 3-month Herceptin holiday like I did last year. Give my body a chance to readjust itself. I do wish those of us on Herceptin alone long term would be followed in more detail. If the FDA does not require that, I suppose it won't be done. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.