HER2 Support Group Forums - View Single Post - Anyone out there have her2+ breast cancer in their family?

StephN · 07-14-2012, 12:47 PM

This is a great idea to bring up again, Lani!

I recall Joe mentioning it to a doctor at San Antonio BC Symposium and it seems that the research interest was not "there" yet ...

Funny how the micro research can take precedence over common sense - but if they felt more knowledge was needed before taking this route, guess that was over my head.

NO BC in my blood relatives except my mother's cousin in the 80's. She also had liver mets. That is all I know.

There was a thread on BC in families here a while back, and it seems the majority who replied had NO known breast cancer in their family. We also had few, if any, risk factors. Most of us were not overweight and pretty physically fit.

We had another thread asking about toxic conditions in the neighborhood where we grew up and many of us lived near old mining facilites, farming areas where chemicals were used, and some even reported running after the mosquito spray trucks!

07-14-2012, 12:47 PM	#6
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Anyone out there have her2+ breast cancer in their family? This is a great idea to bring up again, Lani! I recall Joe mentioning it to a doctor at San Antonio BC Symposium and it seems that the research interest was not "there" yet ... Funny how the micro research can take precedence over common sense - but if they felt more knowledge was needed before taking this route, guess that was over my head. NO BC in my blood relatives except my mother's cousin in the 80's. She also had liver mets. That is all I know. There was a thread on BC in families here a while back, and it seems the majority who replied had NO known breast cancer in their family. We also had few, if any, risk factors. Most of us were not overweight and pretty physically fit. We had another thread asking about toxic conditions in the neighborhood where we grew up and many of us lived near old mining facilites, farming areas where chemicals were used, and some even reported running after the mosquito spray trucks! __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.