Thread: Puzzled??
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Old 01-07-2016, 11:58 AM   #1
Dakini52
Senior Member
 
Join Date: Jan 2010
Location: Edmonds, WA
Posts: 202
Puzzled??

I am confused as to why I appear to be ineligible for any of the vaccine trials that are available. I am currently continuing Herceptin treatment every 3 wks and have been for almost 6 years since a recurrence 3.5 years after my original diagnosis. I live in the Seattle area and there are a number of vaccine trials going on but I am considered ineligible because I don't have active cancer or am continuing Herceptin . This doesn't really make any sense to me. For those of you who have participated in a vaccine program, can you help clear up my confusion? Thank you.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.

Debbie K
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