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TheresaM · 04-10-2007, 10:51 AM

Ragini: I am like you, except that I've never responded to any chemo or experimental drug at all, let alone for a couple of months. The only one was the EAP trial and I got about 5 weeks of response out of that before the Xeloda killed off a foot of my intestine and nearly killed me, and then the drugs stopped working since I had to go off them for a month. I have not experienced stability, let alone remission, in the 3.5 years since diagnosis. I am 41, with a 3-yr-old daughter.

The reason I say you have a sign of hope is because you DID respond to your various treatments, even if only for a short time. That is a good sign, it makes your chances of responding again that much higher. I'm terribly sorry for your pain, that is so wearying, and I understand your hopelessness because most of the time that is how i feel. I just started a new phase-II trial (Wyeth's drug HKI-272) that requires I fly 6 hours from Hawaii to Seattle every week for a while, then every other week. It is so fatiguing but I feel I have to keep trying. My mets are in my lungs, extensively throughout my lymph system, abdomen and skin.

By the way my hubby is from Singpore, and I used to live there. Are you treated at Queen E?

Theresa

04-10-2007, 10:51 AM	#7
TheresaM Member Join Date: Feb 2007 Posts: 23	Ragini you do show one sign of hope... Ragini: I am like you, except that I've never responded to any chemo or experimental drug at all, let alone for a couple of months. The only one was the EAP trial and I got about 5 weeks of response out of that before the Xeloda killed off a foot of my intestine and nearly killed me, and then the drugs stopped working since I had to go off them for a month. I have not experienced stability, let alone remission, in the 3.5 years since diagnosis. I am 41, with a 3-yr-old daughter. The reason I say you have a sign of hope is because you DID respond to your various treatments, even if only for a short time. That is a good sign, it makes your chances of responding again that much higher. I'm terribly sorry for your pain, that is so wearying, and I understand your hopelessness because most of the time that is how i feel. I just started a new phase-II trial (Wyeth's drug HKI-272) that requires I fly 6 hours from Hawaii to Seattle every week for a while, then every other week. It is so fatiguing but I feel I have to keep trying. My mets are in my lungs, extensively throughout my lymph system, abdomen and skin. By the way my hubby is from Singpore, and I used to live there. Are you treated at Queen E? Theresa