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Re: Progression or Necrosis in the brain?
Denise, I've been thinking of you. I want to call, I just need to wait for the kids to be sleeping. If I'm not running around going to appointments, I'm either on line looking for clinical trials, or snuggling my kids on the couch.  I'll call, we'll chat about IT herceptin, clinical trials, decadron, and much more fun topics like that! argh.
I hope you're feeling alright, and we'll chat soon. Thanks for the message my dear. I love hearing from you.
xo Jill
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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