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dearjilly · 04-02-2013, 07:54 AM

Joan,
Thank you! I appreciate the time you have given to explain to me. I asked my rads onc already and he said that the big institutions here don't do the PET's. Weird. I will ask the neurosurgeon on Friday as well. I am looking in to clinical trials called Afatinib and Geron Brain. I am not sure about the biopsy still. I don't like the risks, but I may not have an option, if it continues to grow. Not sure what's happening inside my head, but still praying for necrosis or anything that isn't cancerous!
MRI tomorrow at hospital A, so that's good. Hospital B is only 5 minutes from my house and was my chemo/breast rad hospital. Hospital A was my SRS hospital and they are the BIG hospital in Toronto for the brain. Perhaps the MRI at Hosp. A will show something else, since the whole system is different, like even looking at the images. God I hope this is the case!!!!!
Thanks for helping me out and listening. I love YOU!!!
Jill

04-02-2013, 07:54 AM	#18
dearjilly Senior Member Join Date: Feb 2012 Location: Ontario, Canada Posts: 115	Re: Progression or Necrosis in the brain? Joan, Thank you! I appreciate the time you have given to explain to me. I asked my rads onc already and he said that the big institutions here don't do the PET's. Weird. I will ask the neurosurgeon on Friday as well. I am looking in to clinical trials called Afatinib and Geron Brain. I am not sure about the biopsy still. I don't like the risks, but I may not have an option, if it continues to grow. Not sure what's happening inside my head, but still praying for necrosis or anything that isn't cancerous! MRI tomorrow at hospital A, so that's good. Hospital B is only 5 minutes from my house and was my chemo/breast rad hospital. Hospital A was my SRS hospital and they are the BIG hospital in Toronto for the brain. Perhaps the MRI at Hosp. A will show something else, since the whole system is different, like even looking at the images. God I hope this is the case!!!!! Thanks for helping me out and listening. I love YOU!!! Jill __________________ [ Feb 2013 - NED Mar 2013 - thought I had progression, watching brain. April 2013 - GOT MARRIED!!!! May 2013 - looks like no progression, but necrosis and bigger. Oct-Dec 2013 - Avastin tx Nov 2013 - MRI shows necrosis shrinkage!!!! Jan 2014 - Lepto Mening. disease found Feb 2014 - WBR March - BLAHHHH April 2014 - Liver mets found April 2014 to present - Chemo again, whooohoo. Fun! July 2014, scans look good. Stay on Perjetand hercertin. Nov. 2014 more lepto-mening disease more WBR. Feb 2015 more lepto-mening disease in spine and neck. More radiation. Start on TDM1 no more Perjeta stay on herceptin March 2015 more radiation in my thoracic area, more lepto-meningial disease April 2015 trying to walk again. [/SIZE][/FONT]