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Old 03-28-2013, 04:22 PM   #4
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: Progression or Necrosis in the brain?

Thank you so much for your messages. I really appreciate your time to support me. I am feeling better now, it may be the ativan, but whatever works!
I'm leaning on the necrosis side. I know that Sunnybrook, Hospital A, is a good hospital and know their stuff. They are the ones that originally said "necrosis and post tx scarring".
I try to find some humour in my day to help me cope. I guess it's time for Saturday Night Live on Netflix! xoxo Jill
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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