Finallllllyyyyyy - Yipeeeeeee
Well my friends - I finally received answer from Genetech on the Herceptin/DM1 trial -
I'M IN.......
Talk about being stressed...we are scheduled to leave for vacation tomorrow and we have been back and forth now for seems like an eternity of waiting.
Since I am now down to the bottom of the barrel, so to speak, of what to take next, this comes as a God send.
I take my first dose tomorrow morning and then we leave for vacation - but I am so pleased that they accepted me. Can you believe that out of about 12 tumors sites now - we HAD to find one 2 cm or larger.
Who would believe that we were praying for one to be bigger.. go figure.
I have been having back pain now for about 3 weeks and my onc feels it might be due to the spine mets??
They have called in some Vicadin to see if that helps.
Just wanted to share this with everyone and pray I get response from this trial.
Hope everyone is doing well.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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