|
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine
Joletta,
Chelee posted this one yesterday (?) for another member:
"I think it's very normal for you to be looking for clinical trials. It's good that you want to stay informed and vigilant. I do agree with Debbie that this would be a great time for a 2nd and even 3rd opinion. (Go outside your network/group.) There are lots of trials...which ones you might fit into I don't know? But there are several good clinical trial sites. One I use you can put all your information in & it will give you results that match your dx. It's called "Breast Cancer Trials.org". Here's the link and see if it turns anything up for you in your area.
https://www.breastcancertrials.org/bct_nation/home.seam?cid=5057
That's interesting that your onc would tell you matter of fact that there are no trials for you. I really highly suggest seeking 2nd opinions...this is a perfect time for that. Also what is your onc's doing to moniter you now that your done with trt? How often does he want to see you now? I'm so happy to see you are doing all the right things! It's good you are researching, learning all you can now. But do remember some really don't recur. We have quite a few on this board alone that haven't & are doing well.  Keep us updated."
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|