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Old 02-16-2012, 05:27 PM   #4
bejuce
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Join Date: May 2009
Posts: 510
Re: Sore spot right above right clavicle

Thanks, gals! I'm out of town for my kids school break so it'll have to wait until next week. I still have a lot of pain/tenderness in the area, which is not getting better with me touching and poking on it to figure out if I feel a node or something. I think I'm feeling one, but it's not hard so it may be either due to remaining gunk from a cellulitis I had last month or something else. Could it be lymphedema? Can a supraclavicular node be enlarged as a result of lymphedema? I'm not sure - tried to search online but everything I find on google seems scary to me.

On another note, the 18th will mark 3 years since my diagnosis so I think I'm feeling a little anxiety and doing too many what-ifs on my head. One question: how common or likely are recurrences to the supraclavicular nodes after so much treatment (including radiation to the area)?

And thanks for answering, only my fellow HER-2 sisters understand what it's like worrying about things.

Hugs,

Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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