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Old 08-17-2011, 01:19 PM   #9
wlproctor
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Join Date: Jun 2009
Location: Hixson, TN
Posts: 12
Re: HER2 learning more is it a bad thing?

on your original post you wrote: "My diagnosis was DCIS, Stage 1, HER2+/ER+/PR+, grade 3, node negative, which at time of surgery 3 weeks later to have my breasts removed it had turned into Invasive Ductal Carsinoma"
DCIS would be stage 0, so I'm assuming you have micro-invasive IDC to be stage 1....
I guess that might be borderline and since it's not in the lymph nodes maybe your doctor thinks the MX is enough, but I think it warrants a second opinion. It might only be a small chance that it could have moved out of the breast, but I'd rather be on the safe side myself. Herceptin has few side-effects and generally well tolerated...but it is an expensive drug (8k+ per treatment) so maybe the pathology has to meet certain criteria before the Insurance co. would pay....
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Diagnosed 3/13/2009 from FNA, 39 years old.
4/09 lumpectomy with SNB, did not obtain clear margins.
5/09 - BMX with full axillary dissection on right side.
Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes, ER/PR-, Her2+++, Stage IIa

7/09 - started TCH, finished 10/09
11/09 - 9 more months of Herceptin, finished 7/10

Reconstruction scheduled for Jan 2011

Expander placement completed - January 2011
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