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Old 08-17-2011, 11:09 AM   #5
bejuce
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Join Date: May 2009
Posts: 510
Re: HER2 learning more is it a bad thing?

Hi ladies,

Sorry that you had to join us. There
are lots of positive stories on this site - one member was stage 3C, had two kids post diagnosis and is 5 years out. I plan on being here for a long, long time and so do everyone else on this site. There's a lot of hope for us HER-2+ folks. You can search for those stories in the search window.

Btw, I had one oncologist tell me that out of 50 patients he's treated, only 2 have recurred and even those two are doing fine.
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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