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Old 04-23-2008, 06:41 PM   #1
madubois63
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Join Date: Feb 2005
Location: LI, NY
Posts: 660
update from madubois63, Tiptoe, Tex and the chicken without a name...

Just so everyone knows, I did not disappear off the
face of the earth, but I have been recuperating from
the trip. I kind of noticed my coloring was a little off my last day in California. I called my doc's office and
left a message before I got on the plane. Delta
treated me like a queen. I got a wheel chair ride every
inch of the way. Then I slept for 2 days and saw the
bc onc Monday morning. He ordered a CT and a
sonogram of my liver and did a lot of blood work. I
don't have a definitive diagnosis as of yet, but I know
I am in the middle of another bout of graft verses host
disease of the liver. My bilirubin is very high, and I am
itchy everywhere from the inside out. I see my
leukemia oncologist tomorrow morning. I'll probably
be put back on high dose steroids and anti-rejection
medications - which means I go back on insulin again.
Tiptoe, Tex and the chicken without a name came
with me for Herceptin, but the onc didn't treat me.
Holding off until my liver is under control. They have
been having fun in my daughter's collection of
American Girl mini-rooms. She has four and each is a
different scene. Tiptoe and Tex especially liked the
shoe store. Tex liked the little boots and Tiptoe
worked behind the counter for a bit. The chicken
without a name really liked the outdoor patio with
gazebo and they all had fun in the Manhattan apartment and the horse stables. If all goes as
planned, tomorrow we'll all go down to the "Port" and
get tiny tee shirts (this is a tourist town) then take the
ferry to Connecticut to see my nephews. My sister and
her hubby went to Jamaica for my sissy's 50th
birthday. My daughter and mom are taking care of
the boys, and it's my turn to help out. I think the
"gang" will have fun visiting... Lets see if the pics
work? If not, I'll send them to Joe to post for me...
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery

Last edited by madubois63; 04-23-2008 at 06:46 PM..
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