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Old 03-29-2008, 05:31 PM   #12
duga35
Senior Member
 
Join Date: Jan 2008
Posts: 154
I was also stage 1, grade 3, er/pr positive and her2+++
I've just had my first round of TCH, and I have to say it wasn't pretty. I consulted with several different ocologists around the world as if they thought I should receive treatment. It ran 50/50. My oncologist suggested OncotypeDX to help me decide. He pretty much knew it would come back high because of the her2, but when it came back at a 52 everyone was shocked.

I decided to go with treatment because I'm male, and only 40, having male bc is a total rarity, and there are virtually no cases reported for men my age. I have a wife and an 11 year old daughter that is totally dependant on me and when the Oncotype came back that high, my doctor and I felt that I needed to give it hell, now, instead or waiting for it to met to someplace else in my body. I don't know if I made the right decision or not, especially because I've had just about every side effect under the sun with the TCH, according to my oncologist, and who knows if it is going to work. My oncologist is pretty convinced that it will comeback, but I didn't want to sit here saying "what if" if and when it does.

I just h ad my first CT scan last week and it showed a very small spot on my lung. They don't think it is cancer, but they really don't know. Can't do a biopsy, so the only thing to do is keep an eye on it.

To make a long story short, I think that the individual needs to make the decision to treat or not to treat after they have done as much research as possible.

I hope this helps.......

Doug
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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