Thread: $2100???
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Old 05-11-2007, 07:20 PM   #11
Odette
Senior Member
 
Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Now You're Covered, Now You're Not

Joy, Lolly Brenda,

I know how frustrating this is.
Since 4/13 when I was prescribed the X/T I was told by my Insurance that Xeloda is covered (once), Xeloda is not covered (twice), Tykerb is not covered (twice), Tykerb covered (twice).
I spent two hours with my social worker/patient advocate today when they finally decided that they will pay for Tykerb, but even after 55 minutes on the phone we could not find out at what co-pay level will they cover it.
(The mean time Commitment has approved me for 1 month). The pharmacy is supposed to send it on Monday.
Hopefully a whole month after I had it prescribed I can finally start.
I'll just pay for my Xeloda (get only a week's supply at a time) for now and see if I can get some help. Just do not want to wait any longer.

I tried to write up the whole going back and forth, for the record. It is pretty long and I'm still working on it I'll send a version of it to my Insurance Co also maybe I can find a journalist who would use it in an article. OR we could fit it into the Tykerb Tygers Diarrhea Divas opera...

Keep in touch,
Odette
__________________
May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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