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Trying to decide whether to take Tykerb
Hi, I was wondering if anyone out there has/had brain mets and what your tx has been. My January MRI showed shrinking from stereotactic rads and no new ones. But how long does it take to really shrink?
I restarted herceptin every 3 weeks even though it does not cross BBB. It just makes feel better taking it. My body CT and PET show no disease. I can take Tykerb but I decided to wait until my next MRI to consider taking it. Any thoughts or comments on tx?
I feel fine and my headaches are pretty much gone. I just don't know if I should be proactive and take the Tykerb or do the "wait and see".
Thanks.
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June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
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