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Old 11-19-2008, 05:09 PM   #18
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Smile STEERING CLEAR OF COOTIES... no laughing matter!

Oh, Krista,

A cold is minor yet you feel truly horrible. I have noted that Pinkie seems to get frequent really debilitating colds/flus -- the sore throat thing and the chills and all that you describe. The cough is concerning and seems to last way too long. I worry. Like a Mom.

And yes, of course, a pain in my arm *COULD* mean I am having a heart attack, or lymphedema is threatening and my mind goes in all those dark places (as a bc patient). Even 13 yrs out...

I have one good vein in my good arm. It is at my wrist. They accessed it for my last CT scans (in June). I have a giant egg bulging from it. He went in and was successful in only one try! Yea! I felt absolutely no pain. Double yea!! BUT -- apparently the needles went beyond the vein and created a hematoma. It will take some time to dissipate, i was told my onc. It is slightly less bulging. My mind wonders did contrast escape into my body? Have we created a new major issue? Blah, blah...

I hear you, Krista, is my point. We all hear you.

What I do daily is -- first, wash my hands thoroughly numerous x during the day. Hot water. Lots of soap. It is the first thing I do when returning home. Every single x.

I also, daily -- take multiple vitamins. As you know. Those that I believe help ward off colds and such are: Vit C -- 1,000, Co-Enzyme Q10 -- 150X2, Echinacea w/golden seal -- 100X2 (1 week on this and then stagger w/1 wk on Thymulus 750 w/Astragalus 250X2). Plus I take Grapeseed Extract -- 150, Green Teax3, N-Acetyl Cysteine (rids body of toxins), Omega 3 Mega EFA -- 800 and DHA -- 400 x 2, RM-10 Immune System Proten-zyme Mushroom Blend -- 1165 w/Selium -- 200 X 2-3 a day(on empty stomach), Zinc -- 30.

I drink 10 8-oz glasses of bottled water a day -- to flush out any toxins. It makes your skin moist too.

Zicam is very beneficial w/colds/flu!



There are a number of mushroom blends that are great. If, God forbid, I was midst a crisis I would be on one of those. ie. Shitake and/or Ave w/an accent over the e -- 1 packet every other day. Super powered! Also nut onc has suggested Grifon Pro Maitake-D Fraction drops, Lycopom and Neuromins (DHA) 100 -- 3 X 2. I don't feel the need to add these. Lycopom disagrees w/my belly, but has the super strength of 40 pomegranates which is supposed to be excellent! Also Peakimmune -- 250 X 2 and Glutamine -- 500 (this last of which I do take daily).

These were all recommended by nut onc, who has helped keep me and my immune system working well since '98.

Hope all this helps. I think once you've had ca, you must be super alert to contacting a range of stuff.

I hug, but don't shake hands. I kiss keppis (heads). I exchange loving energy. I move away from coughing people. I get the flu shot every yr and I just got my ev 5 yr pneumonia vaccine. My husband does this too, for many good reasons.

Sending you HEALTHY ENERGY, my Sisters all...
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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