HER2 Support Group Forums - View Single Post - Anyone else have a line of IDC breast cancer?

Joannacco · 02-23-2017, 02:27 PM

Hi everyone. I am a 43 year old mom with 2 young kiddos and was diagnosed last October with IDC with lobular features. It had one focal sample of LVI. Nothing appeared in the pet/Ct with contrast in lymph nodes nor in the MRI but I have been told that is only 80 percent accurate. My Ki67 was high at 50 percent and I am Her2+++ and a little ER+. Grade 2 cancer. I am just wondering if anyone else had a patchwork line of cancer rather than a ball? It was weird because they couldn't see it at all on the mammo, just calcifications. The MRI showed it at 8 cm long! I just about keeled over on Halloween dressed up as bat woman to trick or treat with my kids finding out the line was twice as long as anticipated. Specifically I am wondering if anyone else had a long line but it was not actually in their lymph nodes at time of surgery. Also, my CA-27 score has crept up from 21 to 32 (last taken at 5th chemo infusion) and doc does not seem worried because MRI was completely clear midway after I started TCHP. Anyone have a similar breast cancer story?

02-23-2017, 02:27 PM	#1
Joannacco Junior Member Join Date: Feb 2017 Posts: 4	Anyone else have a line of IDC breast cancer? Hi everyone. I am a 43 year old mom with 2 young kiddos and was diagnosed last October with IDC with lobular features. It had one focal sample of LVI. Nothing appeared in the pet/Ct with contrast in lymph nodes nor in the MRI but I have been told that is only 80 percent accurate. My Ki67 was high at 50 percent and I am Her2+++ and a little ER+. Grade 2 cancer. I am just wondering if anyone else had a patchwork line of cancer rather than a ball? It was weird because they couldn't see it at all on the mammo, just calcifications. The MRI showed it at 8 cm long! I just about keeled over on Halloween dressed up as bat woman to trick or treat with my kids finding out the line was twice as long as anticipated. Specifically I am wondering if anyone else had a long line but it was not actually in their lymph nodes at time of surgery. Also, my CA-27 score has crept up from 21 to 32 (last taken at 5th chemo infusion) and doc does not seem worried because MRI was completely clear midway after I started TCHP. Anyone have a similar breast cancer story?