HER2 Support Group Forums - View Single Post

CourtneyL · 10-10-2009, 07:40 PM

What? I can't believe this. Outrageous! And dangerous. How do they expect them to be found? Especially in younger women who don't go in for routine mammograms.

I found my lump myself as well. I was lying awake in a hotel bed the night before my best friends wedding. Don't know what prompted me to do a self exam but I did. Imagine how difficult it was for me to put on a happy face at the wedding the next day as her maid of honor. I was scared out of my mind. I had just turned 30.

10-10-2009, 07:40 PM	#35
CourtneyL Senior Member Join Date: Aug 2008 Location: San Francisco Posts: 260	Re: Good Advice? What? I can't believe this. Outrageous! And dangerous. How do they expect them to be found? Especially in younger women who don't go in for routine mammograms. I found my lump myself as well. I was lying awake in a hotel bed the night before my best friends wedding. Don't know what prompted me to do a self exam but I did. Imagine how difficult it was for me to put on a happy face at the wedding the next day as her maid of honor. I was scared out of my mind. I had just turned 30. __________________ 4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++ April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response! Sept 08-Dec 08: Herceptin +Zometa for maintenance. Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait. April 09: Gamma Knife 10 brain mets, add Xeloda. Sept 09: Gamma Knife to 1 brain met. Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa. May 10- Sept 10: HER2 Vaccine Trial Sept 10: Add Tykerb for more brain mets. Oct 10: Gamma Knife to 7 brain mets. Dec 10: Switch from Zometa to Denosumab. Jan 11: Gamma Knife to 3 brain mets. March 11: Gemzar/Herceptin for lung/bone progression. April 11: More brain mets - Intrathecal Herceptin June 11: Ixempra/Herceptin for lung, soft tissue progression. Aug 11: Gamma Knife Sep 11: Abraxane/Herceptin Future: NED Send me a PM if you'd like to follow my journey on Caringbridge.