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Re: Need hopeful stories of survivors of Inflammatory Breast Cancer?
Hi Delaney,
I am not sure what procedure she actually had. I will have to call her. I know that there was just one spot and she was unable to work for a short time. What was also amazing about this is that her oncologist (the same one I have) psuhed to have his colleague from another hospital do the surgery because the one where she was treated did not have anyone on staff who could do the surgery. Her oncologist really went to bat for her. So, what was cool another surgeon at another hospital (not affiliated with the hospital that my oncologist worked for) did the surgery and was somehow able to get the insurance to pay.
You may want to look at other's profiles on her because I think Steph is someone who had brain mets and has quite the remarkable story.
Take care,
Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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