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Eric,
I am so sorry that your family is having to deal with this. After reading all the posts, I see that no one has mentioned a dietitian or a nutritionist. I don't know if there is one associated with your oncologist's office or not. I have a friend who had surgery for ovarian cancer about a month ago and is about to have her 2nd chemo treatment. She told me that she had a visit from the "Nutrition Police" (her words, not mine) because she had lost 32 pounds in that time frame because she was not hungry and not eating. Now I know that her situation is completely different from Caryn's, but perhaps a nutritionist might have some answers as to how she can best overcome this obstacle. Could the fatigue be related to the eating?
My heart and prayers go out to you. I am hoping that you can get some answers that will give you some ideas for action. I think it is the not knowing what to do that makes things worse.
Alice
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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