HER2 Support Group Forums - View Single Post - ~Too Many Brain Mets To Count~Mighty Oak's Saga Continues...

Believe51 · 06-12-2009, 04:24 PM

OncoMan just called and first asked how we were digesting what is happening. We are okay. He will be contacting Dana Farber himself on Monday to see what they may have to offer. If they can help, he will take care of everything to get there. If they cannot, treating Ed systemically would not be a problem but he wants me to know that if he wants to stop treatment, it is understandable. This drug is not proven to pass the blood/brain barrier. He feels that the brain should be treated right now "if" we have an option to.

OncoMan tells us like it is and has always inspired some 'glimmer of hope' with each visit or call. The only hope we have now is if Dana Farber or another facility has something experimental or new. This is the only hope we have. Whole Brain Radiation for the second time is almost not an option.

We are almost out of options here. There is nothing we can add to this regime that will help. Miracles are something I would give up some of my life for right now. Hospice will be called if or when he decides to give up treatment.

I pushed the OncoMan for a projection of time and you know how I do not believe in that. Somehow, this time I needed to know.....Ed will start showing signs of disease within 3 months and it is projected that this is all the time we will have. Within 3 months. Why will I not believe that? It is only obvious.

I think part of me died today, but not the part that will continue to plead and search for that miracle. I am sorry to have to give you all this news.>>Believe51

06-12-2009, 04:24 PM	#9
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	OncoMan just called and first asked how we were digesting what is happening. We are okay. He will be contacting Dana Farber himself on Monday to see what they may have to offer. If they can help, he will take care of everything to get there. If they cannot, treating Ed systemically would not be a problem but he wants me to know that if he wants to stop treatment, it is understandable. This drug is not proven to pass the blood/brain barrier. He feels that the brain should be treated right now "if" we have an option to. OncoMan tells us like it is and has always inspired some 'glimmer of hope' with each visit or call. The only hope we have now is if Dana Farber or another facility has something experimental or new. This is the only hope we have. Whole Brain Radiation for the second time is almost not an option. We are almost out of options here. There is nothing we can add to this regime that will help. Miracles are something I would give up some of my life for right now. Hospice will be called if or when he decides to give up treatment. I pushed the OncoMan for a projection of time and you know how I do not believe in that. Somehow, this time I needed to know.....Ed will start showing signs of disease within 3 months and it is projected that this is all the time we will have. Within 3 months. Why will I not believe that? It is only obvious. I think part of me died today, but not the part that will continue to plead and search for that miracle. I am sorry to have to give you all this news.>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!