HER2 Support Group Forums - View Single Post

KatherineM · 11-22-2015, 07:49 PM

Hey, Amy! Glad to hear about your move. And hello to Lizz, too. It's been a long time! I was on just H&P alone for the last three months, (after a summer of Taxol plus H&P, which shrunk the lung mets by 50%). Had hoped that H&P would work, but last week's CT scan showed progression. Going back on Taxol plus H&P tomorrow. Scared, but I guess it was sort of a crap shoot that I'd be okay without chemo. My thinking is -- and would love any thoughts on this -- that it's better to stay on the same treatment for as long as you can, before moving on to another. My onc. originally wanted to put me on Kadcyla, but I'd rather go back on the taxol, if that worked originally. I'm doing lots with diet and yoga, and have been feeling pretty good, but I'm a little thrown by this new development.

Anyway, I have a lot to be grateful for. Kids coming for Thanksgiving. Dogs are sweet. Partner is incredibly supportive. Hope you all have a wonderful holiday!

xo,

Katherine

11-22-2015, 07:49 PM	#27
KatherineM Senior Member Join Date: May 2014 Posts: 94	Re: Hello from Colorado Hey, Amy! Glad to hear about your move. And hello to Lizz, too. It's been a long time! I was on just H&P alone for the last three months, (after a summer of Taxol plus H&P, which shrunk the lung mets by 50%). Had hoped that H&P would work, but last week's CT scan showed progression. Going back on Taxol plus H&P tomorrow. Scared, but I guess it was sort of a crap shoot that I'd be okay without chemo. My thinking is -- and would love any thoughts on this -- that it's better to stay on the same treatment for as long as you can, before moving on to another. My onc. originally wanted to put me on Kadcyla, but I'd rather go back on the taxol, if that worked originally. I'm doing lots with diet and yoga, and have been feeling pretty good, but I'm a little thrown by this new development. Anyway, I have a lot to be grateful for. Kids coming for Thanksgiving. Dogs are sweet. Partner is incredibly supportive. Hope you all have a wonderful holiday! xo, Katherine __________________ _______________________ Diagnosed 3/26/14 BC Stage 3a ER neg PR neg HER-2+ 5 cm tumor in left breast, needle node biopsy positive Started TCHP 4/25/14 - 6 rounds Oncologist can no longer feel tumor, after 4th round Chemo shrunk tumor to less than a mm Lumpectomy and axillary node dissection 9/3/14 Radiation for 5 weeks, with boost Herceptin until 4/3/15 CT Scan on 4/27 shows lung mets (lots of little ones on both sides, largest 1.6 cm) STAGE IV Lung biopsy shows still HER2+++/ER-/PR- Taxol with Herceptin and Perjeta May, June, July 2015 Lung mets reduced by 50% Just H&P through Fall 2015 11/15 Progression Back on Taxol with H&P January 2016 THP no longer working March 2016 Start Kadcyla 3/16 After first treatment, experienced low platelets, tongue turned black, had to have transfusion. Dry cough and shortness of breath for first week, improves over second and third. 4/16 Platelet transfusion after second treatment, blood blisters in mouth. Allergic reaction to platelets. 6/16 Kadcyla not working. Progression to liver, though lung mets smaller. 7/16 Start Xeloda and Tykerb. 11/16 Port infected. Taken out. Have to go off chemo. 1/17 Back on Xeloda and Tykerb 5/17 Tykerb and Herceptin 11/17 Navelbine and Herceptin 12/17 Progression in lungs, liver reevaluated, no progression 1/18 Haloven and Herceptin 2/18 Sloan Kettering consultation 3/18 Brain mets, 16 lesions, largest 16mm 3/18 Cyberknife to 16mm lesion 3/18 Haloven and Tykerb added 4/18 Scan shows all lesions significantly smaller! Some almost gone. Radiation oncologist says she's never seen anything like it 7/18 Brain scan shows progression, w/ with one new lesion. Don't want to do WBR. Will try for tucatinib. 8.15.18 Start Keytruda