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agness · 01-05-2016, 11:01 AM

You are a brave girl and I'm so sorry they treated you so shittily with the screening. F-them. I had a tooth operated on that wasn't numb either and that hurt so bad that I cried, your teeth are right next to your brain so it was really bad. I totally know what you had going on.

A papilloma, huh. That would suck but at least it isn't cancer. The thing is that they might suggest some radical surgery and you don't want that. Make sure you try to track down the best person for the job. I read the story of one gal on another board who had a small cancer develop on her lip. Her surgeon was going to gouge out tissue and leave her with part of her mouth missing. She knew that rads could help, she was pretty sure of it. Since she couldn't get confirmation of that she got an opinion with a radiosurgery center. She was right, they nuked the cancer on her lip and she's fine. Make sure you are talking to the best people possible and in different practice areas -- maybe rads might work for you too, in example. I will dig around online and see what I find.

How are you feeling about stuff? Sending big hugs.

01-05-2016, 11:01 AM	#25
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Bleeding from Good Breast You are a brave girl and I'm so sorry they treated you so shittily with the screening. F-them. I had a tooth operated on that wasn't numb either and that hurt so bad that I cried, your teeth are right next to your brain so it was really bad. I totally know what you had going on. A papilloma, huh. That would suck but at least it isn't cancer. The thing is that they might suggest some radical surgery and you don't want that. Make sure you try to track down the best person for the job. I read the story of one gal on another board who had a small cancer develop on her lip. Her surgeon was going to gouge out tissue and leave her with part of her mouth missing. She knew that rads could help, she was pretty sure of it. Since she couldn't get confirmation of that she got an opinion with a radiosurgery center. She was right, they nuked the cancer on her lip and she's fine. Make sure you are talking to the best people possible and in different practice areas -- maybe rads might work for you too, in example. I will dig around online and see what I find. How are you feeling about stuff? Sending big hugs. __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.