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Re: Brain Mets - new or old?
Just checking in, friends!
Still hanging in there. 
Steroids are really starting to aggravate my tummy. Besides my regular Nexium I'm popping Maalox like M&Ms.
And, naturally, my sleep cycles are whacked. I'm mentally tired, but my body is wired.
The other thing I forgot about from my last stink on Decadron...was the joint pain. My hips, knees, and ankles feel like they're MUCH older than I am.
But, on the bright side...no headache! No balance issues! No weird spastic handwriting issues! And, no dizziness! So, what's a little indigestion and sleeplessness in the big scheme of things!?
Not sure what Tuesday's neuorology appt will bring...but hopefully NOT a recommendation for a craniotomy. I guess I'm a big baby...but that just scares me so much! Too many bad 1970s doctor shows and movies maybe?
Anyway...since you're all being so wonderfully supportive...and praying for good news...I just wanted to give you an update.
With love,
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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