HER2 Support Group Forums - View Single Post - One view of what NICE is, and how it decides in the UK

03-26-2009, 08:35 AM

Please take a look at my post in the Petition thread at http://www.her2support.org/vbulletin...6&postcount=29.

Exactly what I have said we need the oxygen of publicity, we need every single UK resident to contact their MP to to something about this. There is nothing that any individual can to do change what NICE does, it is governed by what they are required to do by the government. The only people who can appeal the NICE deterimation (as it is currently called) are those consultees in the process so we have to hope some or all of them will.

As to the comment re herceptin being used for treating the central nervous system it is well known that herceptin does not cross the blood brain barrier and so why continue to use it for the central nervous system when tykerb is a better drug.

03-26-2009, 08:35 AM	#6
Unregistered Guest Posts: n/a	Please take a look at my post in the Petition thread at http://www.her2support.org/vbulletin...6&postcount=29. Exactly what I have said we need the oxygen of publicity, we need every single UK resident to contact their MP to to something about this. There is nothing that any individual can to do change what NICE does, it is governed by what they are required to do by the government. The only people who can appeal the NICE deterimation (as it is currently called) are those consultees in the process so we have to hope some or all of them will. As to the comment re herceptin being used for treating the central nervous system it is well known that herceptin does not cross the blood brain barrier and so why continue to use it for the central nervous system when tykerb is a better drug.