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Old 05-17-2013, 06:59 PM   #6
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: Steroid/herceptin withdrawal questions for you!

Thank you ladies! I appreciate your feedback and experiences. I am also on this beta blocker for my heart (I know the name now ) Carvedilol. Anyway, I read that this drug causes back pain, check! red eyes/burning, check! Fatigue, weakness, faint feeling, check, check, check!
At this point, I don't know what is causing what, so I've decided to wean off of this heart med. My decision. I'm already on ramipril. I just hate being on so many drugs! argh, what are we to do eh? A constant battle with the drugs, everyday.
and why does every single drug out there "may cause blurred vision"??? huh? this drives me crazy, because all I want is to get my vision back and these drugs could be making it worse. booooo hooooooooo huh? lol
xo Jill
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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