HER2 Support Group Forums - View Single Post

StephN · 11-24-2014, 02:58 PM

Hello Kim & everyone -

My bones have shown some continual slight degeneration at femoral neck, and Zometa seemed worth a try to arrest that. I have been taking my calcium and D3 with some positive result, but even with a good diet some areas continue a slow decline for my age matched numbers. Right now my lower lumbar spine is noted on my last CT scan. This is the area where I had a surgery on L4 two years ago.

I will be very interested to see the report from my next bone screening after 3 every-6-month Zometa infustions.

Ellie - interesting you bring up long term Herceptin and whether that may have an effect on our bones. I think I will pose that question to my oncologist. She does have a special interest in bones. I never thought of that as a possibility and not sure how the science could support that theory.

11-24-2014, 02:58 PM	#11
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Re: Hey Steph and any others on Zometa Hello Kim & everyone - My bones have shown some continual slight degeneration at femoral neck, and Zometa seemed worth a try to arrest that. I have been taking my calcium and D3 with some positive result, but even with a good diet some areas continue a slow decline for my age matched numbers. Right now my lower lumbar spine is noted on my last CT scan. This is the area where I had a surgery on L4 two years ago. I will be very interested to see the report from my next bone screening after 3 every-6-month Zometa infustions. Ellie - interesting you bring up long term Herceptin and whether that may have an effect on our bones. I think I will pose that question to my oncologist. She does have a special interest in bones. I never thought of that as a possibility and not sure how the science could support that theory. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 11-24-2014 at 03:55 PM..