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Update on my treatment here in England...
I have had the results following my scans to see if the tykerb/xeloda is working for my lung mets.. its bad news.. it isnt..
The mets have grown and i have new ones.. i'm devastated..
My oncologist has had to stop the trial.. i dont know where he will go from here.. he says my cancer is proving to resistant to all of the combos ive already tried..
Can anyone suggest anything else to try? I'm so desparate to live.. i dont want to die.. i'm very scared.. any one have any hope for me or encouraging stories..
I currently feel well, hardly breathless just very tired.. am i likely to able to live like this without any treatment for some time? i know no one really knows the answers to my questions but i just need some stories that may help me and bring me out of that darkness that i'm in right now..
Take care
Love jakki
xxx
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Jakki
-xx-
DX May 2005 grade 3 IDC - partial mastectomy/immediate LD Recon. 0 /20 lymph nodes affected
Er+PR+HER2-
E-CMF chemo July 05 - Feb 06, 33 x rads. Tamoxifen
June 06 - Regional Reccurrence - supraclavicular lymph nodes, HER2+. Taxotere chemo Aug 06 - Dec 06, 25 x rads, Arimidex, zoladex, Herceptin.
Feb 07 - further supraclavicular progression, re-staging tests.
April 07 - Lung mets DX, oncologist trying to get me on Tykerb & xeloda on LEAP trial.
June 07 - Lung mets doubled in size, 3 new tumours and one in my back - commenced Tykerb/Xeloda - Zoladex & Arimidex stopped.
September 07 - Tykerb/Xeloda failed.. lung mets still growing and more new ones
October 2007 - Commenced Vinorelbine and back on Herceptin again..
March 2008 - New Scans reveal lung mets still progressing, now have 3cm Liver Met and Bone Met to Sternum - looking for a new clinical trial...
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