HER2 Support Group Forums - View Single Post - hot off the press--targeted therapy in IBC review article

Midwest Alice · 07-15-2010, 06:37 PM

Hey Leslie, I think it is a real plus you had Tykerb and Herceptin. I think the way it works for Herceptin longer than 1 year is if someone is stage 4 from the get go. They think.. thought ... I was. The spots from my spine are gone... so it was ..or a false positive...we will never know.

Sounds like they are going to keep a close watch on you. If I were you I would want PET every 6 months or so for the first few years. I think they will do that. If something pops up then you hit it again.

Also .. they don't know if 2 years of Herceptin is better than 1 year. There is a study on this very thing but the results have not been published yet.
There is a blood test for tumor markers. I would ask to have that test done now for a base line. Then have it done ever so often to check for changes. Chelee was just talking about this test today. Its 29/27 or something like that.

07-15-2010, 06:37 PM	#12
Midwest Alice Senior Member Join Date: Dec 2008 Location: Southern Indiana Posts: 455	Re: hot off the press--targeted therapy in IBC review article Hey Leslie, I think it is a real plus you had Tykerb and Herceptin. I think the way it works for Herceptin longer than 1 year is if someone is stage 4 from the get go. They think.. thought ... I was. The spots from my spine are gone... so it was ..or a false positive...we will never know. Sounds like they are going to keep a close watch on you. If I were you I would want PET every 6 months or so for the first few years. I think they will do that. If something pops up then you hit it again. Also .. they don't know if 2 years of Herceptin is better than 1 year. There is a study on this very thing but the results have not been published yet. There is a blood test for tumor markers. I would ask to have that test done now for a base line. Then have it done ever so often to check for changes. Chelee was just talking about this test today. Its 29/27 or something like that. __________________ Alice 04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53 06/08, 4 A/C, Neulasta 08/08, Herceptin/tax 12 every week 10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks 11/08 33Rads; 12/08 MUGA 48 2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove 4/09 Brain MRI - CLEAR; MUGA 54 7/09 chest ultrasound, 10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!! 1/11 Hip replacement 7/11 Hip 2 replacement 4/12 4 years!! Herceptin 6/12 start reconstruction finish in 12/12 2/14 Herception - 6 years!!! 1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it."