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jones7676 · 04-15-2009, 05:15 AM

Dear Maureen,

First of all, I believe your treatment plan is very wise and my gut feeling sends me positive vibes and it saying is that you will be fine for a long time.

I cannot tell you what to do....but I can say I understand what you are going through. I could not stand the responsibility of giving you"wrong" advice. I can tell you in retrospect of all my personal challenges that I would encourage you to push if you feel something is wrong and never be afraid to get another opinion about what is the "best" treatment. I believe my outcome might have been quite different if Herceptin was available to me right away.....but that does not stop me from fighting every day!

I hope these are the last of your challenges for quite some time - or perhaps for a long, long, long, time as you know there is research going on every day.

I can tell you despite a recent really depressed period I am recovering right now, trying to stay positive and believing I may still be around for quite a while despite all the challenges I face.

However, my nickname where I primarily get chemo treatment is "Mohammed Ali".... so do keep that in mind.

04-15-2009, 05:15 AM	#19
jones7676 Senior Member Join Date: Oct 2006 Location: I live in Christmas, MI - located on the shores of Lake Superior. Posts: 606	Dear Maureen, First of all, I believe your treatment plan is very wise and my gut feeling sends me positive vibes and it saying is that you will be fine for a long time. I cannot tell you what to do....but I can say I understand what you are going through. I could not stand the responsibility of giving you"wrong" advice. I can tell you in retrospect of all my personal challenges that I would encourage you to push if you feel something is wrong and never be afraid to get another opinion about what is the "best" treatment. I believe my outcome might have been quite different if Herceptin was available to me right away.....but that does not stop me from fighting every day! I hope these are the last of your challenges for quite some time - or perhaps for a long, long, long, time as you know there is research going on every day. I can tell you despite a recent really depressed period I am recovering right now, trying to stay positive and believing I may still be around for quite a while despite all the challenges I face. However, my nickname where I primarily get chemo treatment is "Mohammed Ali".... so do keep that in mind. __________________ Barb 10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment