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Old 10-18-2008, 10:28 PM   #30
Rozebud
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Join Date: Nov 2004
Location: Olathe, KS
Posts: 107
And I thought I was the only person that had happened to! I even had my original biopsy redone at Vanderbilt in late 2004 when the pathology showed as being so rare (according to that asco site earlier, only .6% of all cancers) and it came back the same. I had it re-tested (original tumor, not core biopsy) at KU Med and it came back as negative on both, and they retested it twice. Three years of hormonal therapy for nothing.

Get retested .

Sorry, probably getting OT. My gut is that triple positives overall will have a slower time to recurrance than her2-/er&pr+, but faster than hormone positive only, but I don't have any data to back that up wtih.
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Rose

Dx'd 1/04 at 33, while 33 weeks pregnant

Dx: Stage IIIC IDC, ER-, PR+ (23%), Her2=2.7 (IDC)/7.6 (FSH), 2.5cm primary tumor, grade III, 11/18+ nodes (largest 3.8 cm)

Treatment: A/C *4, T *4, 1 year of herceptin (BCIRG 006), mastectomy, rads (7 weeks), zoladex (5 years) with tamoxifen (2 years)/aromisin (3 years), bilateral SGAP summer 05 at NOLA

Oops, retested tumor and I guess I'm er/pr- after all.
Stopped all hormonal tx 10/07. Periods resumed 6/08. Bye bye hot flashes!!!!

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