HER2 Support Group Forums - View Single Post - pain in shoulder blade when I breath deep

fullofbeans · 09-28-2011, 07:12 AM

Thank you all for the prayer..one week to go until my 5th October appointment..

Indeed as many of you have have suggested words can hurt. Truth is that anyone seeing someone fighting like I have to get treatments (many here will relate) is not a kind man to try to break that spirit.. especially when I am still around 5 years later after 6 tumours in the liver in 2006.. And it was about applying for a proper trial not some dubious treatment by a quack.. why the need to repeat 3 times that I will not be cured.. not need, I know what I am facing thank you very much.

He should only be restricted to the lab or early cancer patients. I do not believe that all is well with him.

On a nicer note the weather is very pleasant here and we are having a bit of an indian summer.

Ellie: yes bean counter.. the system needs to change, if it did not cost 1 billion to get drug to market it would not cost so much.. something needs to change or we will never get anywhere. Truth is I think that the American people should ask for a reform of the FDA which has more power than their elected president.

09-28-2011, 07:12 AM	#27
fullofbeans Senior Member Join Date: Jan 2007 Location: UK Posts: 617	Re: pain in shoulder blade when I breath deep Thank you all for the prayer..one week to go until my 5th October appointment.. Indeed as many of you have have suggested words can hurt. Truth is that anyone seeing someone fighting like I have to get treatments (many here will relate) is not a kind man to try to break that spirit.. especially when I am still around 5 years later after 6 tumours in the liver in 2006.. And it was about applying for a proper trial not some dubious treatment by a quack.. why the need to repeat 3 times that I will not be cured.. not need, I know what I am facing thank you very much. He should only be restricted to the lab or early cancer patients. I do not believe that all is well with him. On a nicer note the weather is very pleasant here and we are having a bit of an indian summer. Ellie: yes bean counter.. the system needs to change, if it did not cost 1 billion to get drug to market it would not cost so much.. something needs to change or we will never get anywhere. Truth is I think that the American people should ask for a reform of the FDA which has more power than their elected president. __________________ 35 y/o June 06: BC stage I Grade 3; ER/PR neg Her-2+++; lumpectomies Aug 06: Stage IV liver mets: 6 tumours July 06 to Jan 07: 2FEC+6Taxotere; 3TACE; LITT March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle). Herceptin since 2006 NED til Oct 09 Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised.. Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo.. superior vena cava blocked: stent but face remains puffy April 2012: Teresa Trial, randomised to TDM1 Nov 2012 progressing on TDM1 Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes. Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor. 'Under no circumstances should you lose hope..' Dalai Lama Last edited by fullofbeans; 09-28-2011 at 07:15 AM..*