HER2 Support Group Forums - View Single Post

Chelee · 12-24-2006, 01:06 AM

Alaska Angel, I want to get my actually report of my mammo as you mentioned. As far as I know nothing was found in my left breast on the mammo last year when I was DX? So I would think this is brand new. (But I want the details, as do you.)

So first thing Tues. I will call ahead of time and ask that they have the report ready for me when I get there for my herceptin that day. Then while I am there...I will request a MRI from my surgeon or onc...and see which one wants to authorize it asap. (Because I am NOT waiting!) As you said Alaska, these grow fast. Even three months for me is un-acceptable to wait. If I didn't have this little annoying pain in that breast...I wouldn't be near as anxious about it. And yes, I am a stage IIIA, positive nodes, NO rads. In fact, that breast as felt larger which concerns me?

Hopefully my surgeon will be calling ME Tues to come in to talk with him about this since my mammo was READ at *his* breast center. I know I sure took the time to *remind* his nurse all week that the only reason I KEPT calling for my results is because of my Her2 status. She acknowledged it and said she completely understood.

I want to get my hands on the actually report Tues which should be no problem. Then I will know exactly what they found? This letter tells me nothing...just enough to worry me as I am sure you can relate too.

Chelee

12-24-2006, 01:06 AM	#6
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Alaska Angel, I want to get my actually report of my mammo as you mentioned. As far as I know nothing was found in my left breast on the mammo last year when I was DX? So I would think this is brand new. (But I want the details, as do you.) So first thing Tues. I will call ahead of time and ask that they have the report ready for me when I get there for my herceptin that day. Then while I am there...I will request a MRI from my surgeon or onc...and see which one wants to authorize it asap. (Because I am NOT waiting!) As you said Alaska, these grow fast. Even three months for me is un-acceptable to wait. If I didn't have this little annoying pain in that breast...I wouldn't be near as anxious about it. And yes, I am a stage IIIA, positive nodes, NO rads. In fact, that breast as felt larger which concerns me? Hopefully my surgeon will be calling ME Tues to come in to talk with him about this since my mammo was READ at his breast center. I know I sure took the time to remind his nurse all week that the only reason I KEPT calling for my results is because of my Her2 status. She acknowledged it and said she completely understood. I want to get my hands on the actually report Tues which should be no problem. Then I will know exactly what they found? This letter tells me nothing...just enough to worry me as I am sure you can relate too. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.